It's CHD Awareness week, the week before Valentine's Day. A year ago, I didn't know that. I didn't have any idea how profound of an impact this number one birth defect has. I didn't know the miracles that happen or the miracles that so desperately need to happen. I didn't know about the network of strong parents who love their little warriors and would give anything to give the best to their child.
A year ago, I did't have Lily. I didn't know what it meant to be the mother of a child with a congenital heart defect. I didn't know the impact that a CHD would have on my life, my family, or either of my daughters. And a lot of other people didn't either.
And so I'm starting a new blog. I'll share the journey that we are on as we fight against the various difficulties that Lily has. I'll share what that means to our family, especially her older sister Lorelei. I'll share what we do for Lorelei to keep her as whole as possible while she sits on the sidelines in this fight. And maybe, just maybe, I'll help educate someone along the way.
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